Motor Neurone Disease

Motor Neurone Disease (MND) is a progressive and incurable disease. ICCM supports people living with MND from diagnosis throughout their disease progression.  We aim to meet their needs and maximise lifestyle choices

Motor neurone disease (MND) is a rare condition where motor neurones (specialist nerve cells in the brain and spinal cord) stop working properly. Motor neurones control important muscle activity such as gripping, walking, speaking, swallowing and breathing. It is a progressive disease and over time clients find these activities harder, and eventually impossible, to do. Symptoms – including weak grip, weakness in raising the arms, difficulties in walking and altered speech or voice sound - start gradually over weeks and months and get worse.  There is no cure and life expectancy is usually severely shortened.

A diagnosis of MND can create many challenging physical and mental hurdles to overcome. Lots of support, both physical and psychological, is really important; both at diagnosis and during the progression of the disease. Specific tailored care packages to meet clients’ physical needs and wishes and lifestyle choices are critical.

ICCM’s approach:

 

  • Dynamic care planning and risk assessment to meet changing needs
  • Close liaison with local Multi-Disciplinary Teams
  • Specialist input from our own experienced palliative care nurses
  • Specialist training to incorporate specific care needs, e.g. PEG feeding, NIV, moving and handling
  • End of life care
  • Care and support of immediate family